BLUFFDALE, Utah ( ABC4) – A Bluffdale family has found a way to fund research to help cure a rare disease.

The trailer for Charles’ upcoming documentary, Finding Harmony: A King’s Vision, dropped on Thursday, January 1, and showed ...

Céline Dion, 57, share a rare video message to her fans, amid her heath battle with the rare “stiff person” syndrome.

Ho’omau: Joey’s Journey” is a documentary following Joey and his wife Michele as they travel to Hawai’i Island, where Joey is ...

Five years ago, Joey was diagnosed with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy), a rare autoimmune disease ...

2025 brought acclaim for Nick Wambugu's documentary, recognition as one of the ‘Business Daily’s’ Top 40 under 40, and an ...

… but our independent journalism isn’t free to produce. Help us keep it this way with a tax-deductible donation today. Every year, thousands of parents hear the heart-wrenching news that their child ...

Scientists discovered that certain gene changes allow cells to function even when frataxin, the protein lost in Friedreich’s ataxia, is missing. Experiments in worms, human cells, and mice revealed ...

A genetic disorder that leads to bleeding episodes and life-threatening infections has a new FDA approved treatment, a regulatory decision that marks two notable firsts — the first gene therapy for ...

Lurie's Children's Hospital of Chicago has a new department thanks to an $11 million investment, according to an announcement released Wednesday. The multi-million dollar gift, from Don and Anne ...

The FDA has issued its stamp of approval to a new, cell-based option to treat Wiskott-Aldrich syndrome (WAS), marking the first therapy of its kind for the rare disease and making Italy’s Fondazione ...

For a decade after its discovery, CRISPR gene editing was stuck on the cusp of transforming medicine. Then, in 2023, scientists started using it on sickle-cell disease, and Victoria Gray, a patient ...